Ummmm.....yeah...this is exactly what I love most about this kid!!
Sunday, December 5, 2010
Jenna Meets Santa 2010
Ummmm.....yeah...this is exactly what I love most about this kid!!
Tuesday, November 30, 2010
Thanksgiving 2010
Sunday, November 28, 2010
2 years and Yellow Day
- around 30 pounds, and 35.5 inches tall
- wearing 2T clothing
- wearing size 8 shoes
- getting thicker and longer hair, but still refusing any and all clips or bows
- skipping, jumping, dancing, and doing perfect sommersaults
- daytime potty trained, and waking up dry about 90% of the time
- still riding rear-facing in her carseat
- speaking in 3-5 word sentences, and repeating nearly everything we say (gotta watch it now)
- saying "no" and "mine" to everything, which absolutely makes me nuts!
- Surprisingly, not throwing any temper tantrums
- still using a binky in the car and when she's tired. I know, I know, it's time to ditch it
- Obsessed with Barney, Mickey, Minnie, and Elmo
- happiest when she's playing with her babydoll "Apple." She's such a good little mommy
- still definitely Daddy's girl
- such a funny, curious, joyful little girl, with two lucky parents that love her immensely.
Jenna's Birthday Dinner
New clothes
Loving our singing!
So these two pictures have nothing to do with Jenna's birthday party but I am too excited not to share. We got our tree up on black friday. Seriously, this is a first for me. Usually the tree doesn't go up until the secondish week of December. Last year, our tree went up and then we never even put any ornaments on it. This year, I am determined that I will enjoy the month of December. Most of our shopping is done, and now our house is decorated. We are all set to have a fun December.
The mantle looks prettier in real life. The lights are better in person and the other stuff seems sparklier in person than in this picture. I'm waiting for our stockings to arrive and that will be the final touch.Sunday, November 21, 2010
The BEST news!!!!
Last Wednesday (11-10) when I picked Jenna up from school, her teachers mentioned to me that they thought Jenna would do very well with potty training. She was staying dry between diaper changes and was already going on the potty. They said she had been spending the last week watching all the other kids in her class who are potty trained/training, and was wanting to sit on the potty herself. They said she might be too young, but they wanted to at least try since she seemed so excited about it. And so on Friday (11-12) we brought in lot's of pairs of training underwear and lot's of extra pants. I promised myself I wouldn't get too excited or hopeful. I called on my lunch beak to check her progress. 4 pee accidents, 0 pee successes, 2 poop successes, 0 poop accidents. hmmmm...too early to tell. When I picked her up that afternoon, they told me she still had no poop accidents, had 1 more pee accident, and 1 pee success. They encouraged me to pursue it over the weekend.
I decided to spend the entire weekend at the house. Jenna would wear panties all day, and pull-ups at nap and bedtime. Saturday morning included 3 full pee accidents, and 1 half pee accident (half in her underwear, then ran herself to the potty, and got the other half in the potty). However, she pooped like 3 times that morning in the potty. Saturday afternoon and evening included only 1 pee accident, and multiple successes. Sunday was awesome. All day and evening, Jenna only had one accident! I couldn't believe it. We were nearly constantly reminding her to tell us if she had to go and not to go in her panties. It worked.
Monday morning I dressed her in her panties and packed a ton of spare clothes and back to daycare we went. Her teachers all clapped and danced and cheered for her. When I picked her up they told me she only had one accident all day, and it was when she was outside playing. Tuesday went the same and so did Wednesday. Thursday and Friday she had NO accidents. Saturday and Sunday also were accident free. We are continuing with the pull-ups for bedtime and naptime, although this morning is the only morning she woke up with it being a bit wet. Her teachers said that it is always dry after her naps too. We are so excited for our big girl, we just can't believe it. The funniest thing is tonight, the 3 of us were in our room putting laundry away, and after a few minutes Jenna disappeared. We heard her fumbling around a few minutes later and found her in her bathroom, in the dark, going potty. Apparently she didn't feel the need to ask for our help.
Tuesday, November 9, 2010
brown day
The lighting is weird but her tights are pink, brown, orange, and cream stripes. Honestly, when else can you get away with horizontal stripes on your legs??
Monday, November 8, 2010
the surgery
We checked in and they got Pat all prepped, poor guy got poked 3 times before his IV finally worked. Once he was ready, they allowed his parents, Tom and Shelly, and my mom to come back. The whole group was a bundle of nerves. They moved us to another holding area and on our way over we ran into Nonnie. We came to a point on our walk through the hospital that we had to split up. They couldn't allow the whole group back and so my family and Pat's had to head to the waiting room. It was an emotional 'see you later' that was said. I bit my lip and willed myself to keep it together. Pat didn't need me to be a wreck. Once we were in the holding area, the anesthesiologist and the surgeon came by. Once again, seeing and talking with Dr. Cunningham helped ease my fears. Within 5 minutes they came to get Pat and so it was time for me to leave. I really don't remember what we said to each other...just that it was overwhelmingly difficult to walk away as they wheeled my husband back to surgery. As soon as I rounded the corner the tears started flowing.
Surgery was supposed to take about two hours. They gave us a number and in the waiting room was a large TV screen that listed all the patient numbers and their status. It reminded me of an airport where you check the screen for your flight information. So we sat and stared at the screen. Shelly and my mom carried on conversation, nonnie chimed in occasionally, and Tom read the paper. Our close friend Abby arrived shortly after and sat with us. Shelly's sister came and sat as well. My friend Erica stopped by with a jamba juice that I couldn't drink. And then our close friend Brian arrived. The group of us sat and waited. Brian, Abby and my mom talked and laughed, and eventually got me to relax and join their conversation. About 2 hours later, Dr Cunningham appeared in the doorway and motioned for me to join him in the hall.
He told me that the spleen was in fact, huge but that surgery went well. I pressed for more at which point he politely cut me off and gently reminded me what I already knew. We would have to wait for the pathology results which wouldn't be ready until Monday at the earliest. He also informed that a portion of Pat's spleen was being sent out for special studies. Pat had to stay in recovery for about 90 minutes and then a room would be available. Pat's parents left to take care of a few things and my Nonnie left. Abby, Brian, and my mom stayed with me until I could see Pat, which I was so grateful for. The three of them take me as I am. They know my impatience, they accept my moods, and they knew exactly what I needed at every moment throughout this whole experience.
Friday, November 5, 2010
Halloween 2010, part 2
Not the best picture, but at least I'm in it!
Wednesday, October 20, 2010
Halloween 2010
Tuesday, October 19, 2010
the wait
We had to line a few things up in preparation. The most important of those being sperm banking. We knew that chemo would pretty much render Pat sterile and so we got everything in order to bank sperm for our future. These were calls I never expected to be making. Pat was very good natured about the whole thing and managed to crack quite a few jokes even whilst standing in the fertility clinic waiting room.
One of the other things that seemed really important at the time was getting a spare room all set up. I was nervous that we would be spending a lot of time away from home and that when we were home we were going to need extra help with Jenna. I wanted a comfortable place for our parents to stay. We had an extra bedroom that we affectionately referred to as the hoarder room. Truly, that's exactly what the room looked like. We always kept the door shut and it was essentially full of all kinds of things that we didn't know what to do with. I re-organized all of it and either sold it, donated it, or put it in plastic bins, which now reside in the garage. We decided that this bedroom would eventually become Jenna's bedroom and so we painted it pink and bought a full size bed. Once the room was organized and all set up, I felt better.
We spent as much time with Jenna as possible. We went to the park and the zoo, and stopped enforcing such things as bedtime. We spent a lot of time with our family and close friends. I was very concerned about the fact that if Pat was going to go through chemo his immune system would be so weak and unable to handle visitors. I wanted him to enjoy the people he loved as much as possible. We ate yummy meals and didn't skip out on dessert.
As dramatic as it sounds, the way we both viewed our lives changed so much during this time. We said things like, when this is all over, we are going to... We realized that waiting for the perfect time to do things like take a family vacation, or expand our little family, was a luxury we shouldn't take for granted. It's so cliche to say things like life is short, or you never know when your time is up. Logically I know those statements are true but honestly I still make all these elaborate plans for the future. All the sudden, I was faced with the fact that the future didn't look at all like I had planned.
Monday, October 18, 2010
The Patch
Monday, October 11, 2010
Dr. Cunningham and trust
Dr Cunningham walked in, shook each of our hands as he introduced himself, and then sat down and read Pat's chart. Seriously, we sat in silence as he read through everything, and thumbed through all the papers. Pat and I kept looking at each other because it was kind of a long, awkward silence. Finally, he peered over his glasses at Pat and said, "so basically you had some weird blood levels, your doctor sent you to an oncologist who found out you have a large spleen, and now you're here to talk to me about removing it." Ummm....yep that pretty much sums it up. He looked older than I remember him. His hair, once salt and pepper, is now white, and there's much less of it. Still seemed pretty mellow.
He then proceeded to read each of the reports out loud to us, explaining each as he went. He started with labs and told us how Pat's red and white cells, as well as platelets were remarkably low. Yep, knew about that. Then he started reading the CT scan, "spleen remarkably enlarged, with multiple lesions throughout." Wait...what??? I quickly cut in and ask him to repeat what he just said. He does and then looks at me waiting for a response. I tell him no one has told us about lesions. He nonchalantly says, "oh. Well I'll keep reading then." He then mentions that there are 2 enlarged lymph nodes near the spleen and two enlarged lymph nodes lower in Pat's abdominal cavity. He pauses and looks at me and I tell him how that is also new information to us. He then moves on to the the PET scan and tells us how the spleen reacted as well as the four lymph nodes. We sit quietly. Dr Cunningham closes the chart and turns his chair to face us.
He explains that all the information we need to get a true diagnosis is in the spleen. He explains that he feels that the spleen needs to come out. Pat asks if they could just biopsy it. The doctor says well we could but I think it really needs to be removed. Based on the scans it seems very diseased and should be removed. He explains that he will remove it through 4 incisions and that Pat will have to stay in the hospital for 1-2 nights. I ask about the lymph nodes and he tells me that the only way to get to them is by cutting Pat completely open and removing most of his organs, and that it isn't worth the risk when the spleen will have all the answers we need. He then asks if we have any questions. So I go for it again. I ask him based on all the reports he just read, does he think it is lymphoma. I totally expect the same dancing around the topic answer that I got from the oncologist. So I'm totally shocked when he instead says "yeah, most likely."
Wow. I thank him for his honesty, and then apologize for being so pushy and direct. He gives me a wry smile, and dismisses the idea completely. He then looks at us and explains that a doctor-patient relationship depends completely on trust. If we don't trust him it's never going to work. Therefore, he has to do his part to make sure we can always trust him and that starts with him being as open and honest as possible. He tells us he won't ever hide the truth even if the truth sucks. I am all at once completely at ease with this man operating on mine.
He then goes on to explain that surgery will be scheduled 3 weeks out. 3 weeks!!!?? Before I could protest, he quickly explained that while you don't need your spleen to live, not having one leaves a person susceptible to 3 main illnesses. Pneumonia, haemophilus influenza, and meningitis, and as such, it would be best to immunize Pat against these 3 diseases prior to surgery. He tells us that the body then needs about 3 weeks to build up the antibodies and then we are good to go. It is best to give the immunizations while the spleen is still in the body and the immune system is intact. He assures us that even in the case of cancer, 3 weeks will not matter, and the risk of him contracting a bad case of pneumonia in this valley is high. I unhappily agree with the plan and so surgery is scheduled for September 3rd.
Sunday, October 10, 2010
Pat's 30th
Before any of this started, I had considered having a party for him. I had planned on including all our friends, and then Pat's mom mentioned including some family as well and offered her home and backyard for the party. Once all of this started, Pat said he preferred to spend the day with just close family and friends, and no party. And so we spent some time with his parents and sister and some time with my parents over the weekend. On his actual birthday I decided to make some of his favorite foods and invited our bestfriends Abby and Brian over. I took the afternoon off to prepare. We had a wonderful dinner and I even made his very favorite chocolate cake with home made vanilla ice cream. So very Martha of me. When I look at the pictures from this night, all I can see is how pale and tired Pat looks. He doesn't look like his usual self to me.
The following weekend we went out with our whole group and celebrated Pat and Abby's birthday (they are 4 days apart). We had Abby and Brian fill everyone in before we arrived just so it wouldn't be weird if we had to leave early. Our friends were nervous but hopeful and provided a good distraction for us that night. Right during the middle of dinner but broke a fever and had to leave the table for a short bit, and I was happy everyone already knew and didn't have to ask a bunch of questions. A few days later, Abby posted her pictures and I was again focused on how Pat just didn't look like himself.
During this time Pat was taking naps everyday. He was going to bed early. He was still experiencing the night sweats and random fevers. I was preparing myself for the news that he was sick and trying to think of how we were going to handle the months of chemo that were coming. I was also trying to enjoy every single second with him that I could before we faced that. Being away from him was agony. It was all I could do to go to work every day. Other than work, I didn't want to spend one minute away from him. Not that I was convinced he was going to die, because honestly, I never considered that. I just knew that chemo was going to be incredibly difficult, and I wanted to have as much fun with him as I could before that started.